Rhiana is almost 14 and has very recently been diagnosed with 'Chiari Malformation'. This basically means that the lower part of the brain is descended and pushing down into a confined space on her spinal column. The surgeon needs to remove a section of her skull, along with the most of the 1st and 2nd vertabrae, to free up space in this area, allowing the fluid to flow freely again (this fluid has currently filled her spinal cord, causing her to have scoliosis and they are anxious that this is relieved so it doesn't cause further neurological problems - ie. loss of use in her arms or legs etc). A 'patch' will then be stitched into the dura, creating more space for the brain. After having this surgery, she will be in hospital for approx 4-5 days and will then need approx 3-4 weeks off school (at least)Please pray that her recovery is miraculous and that she will not suffer too much pain. Please also pray for a real peace for Rhiana. Since the Chiari Malformation has caused Rhiana to have Scoliosis, please also pray that this current surgery causes the curve to remain consistent (or even be reduced) as Rhiana will need approximately 1 year to recover from this surgery before having her spinal fusion.
24th September 2008
Rhiana's surgery went extremely well. She spent 5 days in hospital and came home with 32 staples in her head! She experienced a huge amount of stiffness in her neck (due to the muscles having been cut) and regular headaches. These are now getting fewer and, apart from some issues with her muscles going into spasm this week!, she is doing really well and should be back to school next week! SHE IS AMAZING!!!!
WE WANT TO THANK YOU ALL SO MUCH FOR YOUR PRAYERS!
Please continue to pray for the following:
- That the headaches would subside.
- That her muscle spasms would stop.
- That her scoliosis would be healed (meaning no more surgery!)
- That she would suffer no other symptoms/problems related to the Chiari.
We will continue to update you all on how she's doing!
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